This past week I met an oncologist. Not a “top” guy like Dr. J or Dr. S but an oncologist nonetheless. We started talking about Myeloma and the conversation went something like this:
RANDOM DOCTOR: You have Myeloma?
RANDOM DOCTOR: Who is treating you?
ME: I see Dr. J at Mount Sinai and am having my transplant done at Hackensack in coordination with Dr. S.
RANDOM DOCTOR: Those are great doctors.
ME: The best – although they don’t agree on protocol. Dr. J wants to do an auto transplant while Dr. S wants to do an allo.
RANDOM DOCTOR: Dr. S wants EVERYONE to have an allo.
ME: Well we chose to go with Dr. J’s protocol because he has been treating me since diagnosis. Although I do have chromosome 17p deletion.
RANDOM DOCTOR: 17p? EWWWW?
Really? That was his response? “EWWWW?” What is that? I politely reminded him that I ran a 5k this week. I feel great. I have a host of other factors (youth, strength, overall health, no kidney impairment, etc) that help offset the genetics somewhat. I also politely reminded him that I am a “one” as per a previous blog post regarding CLICK HERE research that reclassifies Myeloma staging.
EWWWW? That is not proper for a doctor, much less an oncologist to say. After I reminded him of all the ways I choose to live in strength and not live in fear I politely said “This conversation is over.” Although I really wanted to say “STFU!”