8/28/14 – The Bradstrong Chargers

Click here to read a story about a remarkable young man, my nephew Eli.

http://www.themmrf.org/donate-now-take-action/join-an-event/spirit-of-hope/chicago/coustan.html

When I was first diagnosed he used to ask his parents “Does Uncle Brad still have Cancer?” I believe with all of his successful fundraising efforts someday he will never have to ask that question again!

Thank you Eli for your spirit and passion. My heart is full.

8/27/14 – Lemonade

When I last left you guys we were working on the attrition strategy.  Waiting out Myeloma until it tires itself out and then pouncing on it when it is weak.

So far … that seems to be working.  The waiting it out part not the tiring it out part.

I received a whole slew of blood work, scans and biopsy news from Mt. Sinai yesterday and the results indicate that we are making some progress but slow progress.

First – all of the Myeloma measurements are just about where they were for the last cycle.  No significant change.  The IGg number is higher although still normal.  The Kappa Chain number is either slightly higher or slightly lower but virtually unchanged.  I can’t remember what the reading was when I did the blood work at Sloan Kettering for the transplant doctor, Dr. K, but the results are within the margin for lab error anyway.  Negligible.  My M Spike is slightly lower than it was at Sloan.  But again – negligible given that different labs have different readings.  

With all certainty I can say that this HD Carfilzomib, Pomalyst and Dexamethasone is working on the proteins that don’t matter. They are all being knocked out way below normal range.  This can be seen in the ratio of Kappa chain proteins to Lambda chain proteins which is as high as it has ever been.  i am not one to interpret but hopefully that is a good indicator that we have stabilized (somewhat) and the regimen will begin to work on the bad proteins now when we return to treatment next week.

Yes – the results are disappointing – but straight line progress is not a realistic expectation.  There will be ups and downs.  The past few months have held more downs for sure but I am working the rope-a-dope strategy until it turns around.  I am thankful to Helene and the kids for keeping me smiling and sexy through it all.

The biopsy on the back came in as expected.  It is Myeloma tissue growing outside the bone.  I will have that radiated beginning Tuesday.  It is actually a welcome relief because last week I spent EVERY DAY (except Thursday) at Mt. Sinai.  It is nice to have the time away from that place no matter how much I like it there.  

We also did a scan on my right hip – at my request – because I have tremendous pain there.  The pain there is very similar to when I was diagnosed.  I am having trouble getting around.  I can’t run or jump – so the gym has been out for now.  I can’t even get in and out of the car without tremendous pain right now.  I am back to the holding on to the side of the dresser/bed/chair for support when I put my pants on.  Getting up the stairs is really, really difficult.  Again – this time on the opposite hip.  This shit is quite relentless, this Myeloma.  The GOOD NEWS is that the scan showed nothing out of the ordinary.  No plasmacytomas or tumors in that area.  Just good ol’ Myeloma and bone lesions doing their thing.  I can handle that.

OK – enough bitching – how do you find a SILVER LINING out of all of this?  Welp.  It is tough.  I’d be lying if I said it was easy.  BUT – really as each day goes by I feel a little bit better.  The pain in the hip remains but the back pain is gone.  I wake up with a headache every morning but they are becoming less severe by the day.  Dehydration – I think.  Paying very careful attention to the kidneys and making sure I drink water, water, water all the time.  Kidney function is still great according to all the measurements but being particularly proactive in that area.  But seriously – I feel good.  I feel like Myeloma activity has peaked here and we are about to go on a downhill run against it where things are going to ease up as the Chemo takes hold.  

So, what do you do?  How do you find the SILVER LINING here?  You make LEMONADE.  You know the saying … “When life gives you LEMONS …”  

We did manage to get to the beach when all was said and done.  The two weeks in Margate we were hoping for, as you know, we had to cancel.  But we ended up in Rehoboth thanks to the break in the action at Mt. Sinai, an off week for Chemo and the generosity of an old friend.  After hearing that we weren’t going to start the radiation for another week I called my high school friend Kevin and told him I was renting a place in Bethany Beach for the week.  By the way – I LOVE BETHANY BEACH.  Sorry Jersey Shore enthusiasts – I love it there as well – BUT Bethany/Rehoboth is really my favorite place to go for a beach vacation. Anyway – back to our story.  I called my friend Kevin because I knew he had a home in Rehoboth and wanted to see if we could get together when we were down there.  Instead, he invited us to stay with him at his house.  NOW – for those of you who know me well – and even some who don’t – this is a BIG STEP for me.  I normally don’t like to stay at anyone’s house.  I have a routine.  I don’t like to mess that up.  I have issues – you know – poop and stuff.  I don’t like to stay at other people’s homes.  It isn’t something that comes naturally to me.  Kevin caught me in a moment of weakness though and wouldn’t take “no” for an answer.  When I called him I was coming home from Mt. Sinai on Friday afternoon.  It was after a LONG, LONG week of chemo, biopsies, bone scans and travel.  Had I been on my game I would have told him that “I already have a place rented” or something like that but I was off.  

BUT – WOW – it really could not have worked out any better for us.  First of all, his home is beautiful and right on the beach.  There is a tennis court in the community and a swimming pool.  The kids are having a great time.  AND – we are in my favorite place – not even five minutes from Rehoboth – Nicola’s, Funland and the best chocolate peanut butter ice cream in the world.  YES – in the world.  Kevin and his family were here Saturday, Sunday and Monday.  Now they are back home in DC (school started there already) and they are coming back Friday night.  We are leaving Saturday AM so we will get to spend a little more time with them.

So – there are SILVER LININGS everywhere – even in the midst of pain, chaos and Cancer.  Victor and I were talking about this over ice cream last night.  The conversation was about making something out of nothing.  You know – making LEMONADE.  We made lots of LEMONADE this week.

We have been in the ocean, played tennis, hung out on the boardwalk – played boardwalk games and rode boardwalk rides.  We went fishing on the beach.  We bought a skim board to ride waves in the ocean.  We went bike riding.  I wake up every morning and walk down the road to Dewey Beach to pick up coffee and bagels for everyone.  That walk is tremendous.  I can smell the ocean.  I can smell the sand.  Fresh air for a Cancer patient is the best medicine.  Ava shared the walk with me the other morning.  It is just GREAT.  It is GREAT down here.  It is a better prescription than anything Dr. J could give me.  The BEACH, my FAMILY and the chance to see a GREAT, GREAT FRIEND.

For all of us, the SILVER LINING is that we GOT that beach vacation.  No…it wasn’t two weeks as originally planned but the truth is that the first week of that vacation I would have been working anyway.  Ava and Helene would have had to drive up to Westfield twice for cheerleading and Victor and I once for baseball.  So we got the vacation.  We are doing everything we wanted to do but just condensed the time.  Sorry work – I have to say it – I haven’t thought much about you this week.  I promise I will be back to you next week but this week is for other things.

For me, the SILVER LINING is that I got to see my friend.  Growing up in Chicago, spending time in DC, living in New York it is hard to keep connections.  There is always a sense of displacement because you never really know what your “home base” is.  As Kevin put it so eloquently describing our relationship to someone in his community – “We went to high school together and left for college and Brad never came back.”  True.  My parents moved back to Chicago and that’s where I went back to.  But our connection remains strong.  The real SILVER LINING in all of this for me is getting a chance to reminisce with Kevin about growing up.  The real SILVER LINING is hanging out with Kevin’s wife, Lisa.  I probably haven’t seen her since their wedding.  The real SILVER LINING is getting to hang out with Kevin’s kids – getting to watch them interact with my kids.  Kevin and Lisa have raised the kind of kids that parents could only dream about.  They were so nice to our kids.  Their kids are intelligent, polite, hard working, outgoing … I could go on and on but clearly they have been raised by great parents.  That stuff makes me so happy.  Even though they are four and six years older than our kids, they found common ground.  My kids really looked up to them.

So … it is an old adage but a true one.  Making LEMONADE.  I am so thankful my family is as resilient as they are.  it is frustrating to be at the beach and be so compromised.  I have a tough time supporting myself in the ocean waves due to my hip.  Even casting the fishing rods I had to be conscious of the waves crashing against my body and knocking me down unexpectedly.  My kids definitely know that I am compromised but we won’t let it stop us from doing anything we want to do.  Sometimes I will just watch.  That is pretty tough for me.  I like to DO, not WATCH.  BUT – if I can get over my irrational stay at someone else’s house thing, then I can do the observer thing too.  The joy is in being together.  The joy is in taking a little slice out of the calendar and doing nothing but being us – our family – for that week.

8/20/14 – A New Take On an Old Strategy

As I have gone through the last few weeks of treatment I keep running through my mind all of the different ways I have in my arsenal to beat this darn disease.

I have conventional medicine – chemotherapy, radiation, monitoring, clinical trials, transplants and everything that I am afforded by my doctors, my hospitals and my insurance plan.  Heck – if I could I would even go outside the insurance plan.  Everything – EVERYTHING – modern medicine offers is on the table.

I have alternative medicine – acupuncture, massage, yoga, nutrition, supplements, herbs, coffee enemas (wait – no – I don’t think I am ready for the coffee enema yet) and stress relief through mediation and breathing exercises.

I have love and support – family, friends, colleagues, text messages, comments on the blog, emails, phone calls – all of the ways that my community shows me they care and continue to care about me and my well being.  One friend emails me almost every other day (or at least as often as I put a blog up) and says “I hope I am not bugging you with too many emails.”  NOPE!  You can never bug me – they are the very thing that keeps me fighting and going.

Lastly, I have regularity – family, work, friends, fantasy football, paying bills.  This is the stuff that helps me live my life.  If I don’t get up and go to work, if I don’t continue to write, if I don’t spend that beach time next week with my family or take care of my household responsibilities then Cancer wins.  My life goes on day by day – sometimes as mundane as it is – but it goes on as if it did before Cancer happened.  REGULARITY gives me some sense of control.

BUT – I have to admit.  This round is tough.  Since I started on the high dose Carfilzomib I have been a little more shaky.  I have been a little more tired, edgy and weak.  I haven’t been able to work out because of the back pain (although minor now) that the tissue/mass has caused.  Maybe it is because of the dosage increase or maybe it is because it is my first time back on infusion chemo in about eight months.  OR – maybe my body is just deteriorating.  I notice it.  I move a little slower now.  I move a little more carefully.  I can’t go at things with reckless abandon like I once did.  Now my right hip is beginning to hurt.  Doesn’t hurt so much now but before the Carfilzomib cycle began I couldn’t walk up the stairs without help.  Do I have another spot in the right hip similar to what I had in the left hip upon diagnosis?  I don’t know.  I am going to play it safe though.  Even though I am not in any pain there I am having a PET-CT done on the spot on Friday just to be sure.  Doctors think it just might be that the back mass may be hitting a nerve.  Don’t know.  Gotta play it conservatively and safe.  Need to find out facts not suppositions.

It has been TOUGH.  I had scheduled my entire work week down in South Jersey and Philadelphia this week based on the fact that we had the shore house and I would just work from there for the first week before taking off the second for vacation.  Once I scheduled all of these doctors appointments I cancelled my week down there but I had one appointment I could not cancel.  So – yesterday I woke up (4:30 AM) drove 1 1/2 hours to Cherry Hill for a 7:30 breakfast.  Drove back to the city (NYC) for my back biopsy at 11:30 AM.  Took advantage of some down time and had lunch with a client in NYC.  Went to treatment at 2:00 and then had an MRI with contrast of the back at 5:30.  LONG, LONG, DAY!  I was poked and prodded more times than a tailor’s pin cushion.

As I was sitting (laying) on the table for the biopsy I was taking to the doctor during the procedure (they didn’t put me under which he probably regretted) about how I am going to beat this Myeloma.  I will share that thought with all of you.

First of all – I was once told that there are two kinds of Cancer.  The bad kind and the really bad kind so you should hope that if you get Cancer you get the bad kind.

Secondly – I am glad (in some sick perverted way) that this is happening to me NOW.  I am glad that Myeloma chose to be so relentless (left hip, aggressive, back, right hip) early on in it’s pursuit of me because I am stronger now than I would be when I am older so I am able to withstand the pain, the discomfort and the inconvenience with more tolerance now than later.  As I said last post – RIGHT NOW – I am stronger than Cancer.  I am stronger then Myleoma.

So I told Dr. M during the biopsy that my strategy is to wait it out.  I will outlast Myeloma.  Like Ali doing a rope-a-dope, taking his punishment and then charging back out late to knock his opponent out.  https://www.youtube.com/watch?v=b2FtrYwzdp8&list=PLEZmOP1KGUqr8YWMga6wvcr1KoOvrbVob&index=2  “Down goes MYELOMA!  Down goes MYELOMA!”  OK – wrong fight but you get the idea.

I was also telling Dr. M about an old story I once heard about Jerry Seinfeld.  Someone once asked him how he made it in comedy when so many others failed.  He said that every day he had lunch in the park with a group of guys.  After a while, guys started dropping out of the lunch group because they got “regular jobs.”  Pretty soon, he realized he was the only one left in the lunch group.  He just outlasted everyone.  He kept forging ahead.  When people said “no” he kept going and pretty soon they had no other choice because everyone else quit.  He was the only one left.  He outlasted them.

So… my strategy?  Stay on the ropes.  Take my beating now while I am strong and let Myeloma tire itself out.  This shit is relentless right now so I will let it keep coming.  I will take everything it throws at me.  Weakness, pain, soreness, tumors, tissue,  bone lesions, constipation, diarrhea, fatigue, whatever.  And when it is all done punching I will hit back.  BAM – clinical trial here.  BAM – clinical trial there.  BAM – T Cell Depleted transplant.  BAM – Newly approved drug.  BAM – Something that hasn’t even been INVENTED yet but will be available to me later because I took my punishment NOW.  

BRING IT.  BRING IT.  BRING IT ALL.  I got this.

I got this.

8/16/14 – Change of Plans

Now that I have had a good night sleep for the first time all week – thanks Percocet – I can reflect back on the past week and what lies ahead for our family in the constant battle that we face called Myeloma.

I spent four of five days last week at Mount Sinai including yesterday to meet with Dr. K, who will be radiating the tissue found in the MRI.  It was a wild week full of emotions.  In fact, I slept so well last night that it is almost noon and my head is still a little cloudy.

I brought my MRI disc to Dr. J on Monday to load into the Mt. Sinai system.  On Tuesday, as mentioned a couple of posts back, we looked at it together and saw an intact spine and vertebrae with no fractures or compression.  We did see, however, a mass growing outside the bones.  He wanted the neuro radiologist to look at if further before making a comment.

Wednesday I received an email from one of the NPs saying that the neuro radiologist saw a mass and Dr. J says it needs to be radiated.  That’s it.  A mass that needs to be radiated.  What do I do with that information?  You got it … Google!  Google is the most dangerous thing a Cancer patient can do to themselves.  I was convinced, based on my interpretation of the NP’s email, that I was terminal.  In fact, I was convinced that I had 3 months left.  3 MONTHS TO LIVE!

What would go through your mind?  3 MONTHS TO LIVE?  How do you prioritize?  What do you do first?  Let’s just say that beyond double and triple checking that the life insurance premiums are paid up I don’t know the answer to that one.  I wasn’t very good at the organization of my last 3 months on Earth.  I had too much on the list to accomplish.

What made that even worse was that I spent an hour and fifteen minutes of one of my final 90 days alive on a toilet in the men’s room at the Huntington Hilton on Long Island.  I was convinced that I was going to die right then and there.  Given my aversion to public rest rooms that would not have been my preferred spot for my final breath.  

That is why I sent the email back to the NP and said – “I need to see Dr. J face to face!  From what I am reading, this is a terminal situation!”  She responded back that it wasn’t terminal but that I could come in at 3:00 PM, which is what I did.  It was at that face to face appointment that he described exactly what they found – which wasn’t a “mass” per se but some soft Myeloma tissue outside the bone.  It wasn’t in danger of disrupting my organs as it wasn’t large and wasn’t pressing up against anything.  RELIEF!  

And for those of you who are battling Cancer or those of you (I hope not) who may in the future that is the greatest lesson learned from this experience.  COMMUNICATION is vital between you and your doctors.  I read comments on Facebook forums and Twitter feeds from people who are looking for answers.  My comment back is always the same:  “ASK YOUR DOCTOR!”  And if your doctor doesn’t respond?  Get a new doctor!  t am fortunate.  Dr. J and his staff are always readily available by phone, cell phone, email and they are, for the most part, extremely responsive.  BUT – my lesson learned is that I have to be careful and verify every piece of information and communication and if I am not clear on something it is MY RESPONSIBILITY to make a face to face appointment with my doctor to discuss and gain clarity.

I am NOT going to die in 3 months.  I am pretty sure of that now.  I am, however, going to have to fight a bit harder now.  Cancer just took our vacation away because I have to get 10 straight days of radiation starting next Monday.  We had a shore house for two weeks.  That is no more.  Next week I will be at Mount Sinai again for three days.  I have two days of Chemo, one more MRI with contrast, a biopsy of the tissue and we will do the mapping for the radiation treatments.

In the mean time, we are going to persevere and salvage our family time regardless.  Cancer can bend this family – but it can’t break this family.  Helene and Victor are going to drive to Williamsport Monday and check out some Little League World Series action.  We had to drive back from the shore a few times the first week anyway so Ava could be back for cheerleading so less stress on that front.  Tomorrow we get to see our cousins.  Victor and I are taking a tour of the SNY studios on Thursday night.  And then at the end of NEXT week – Friday – we are going to the shore for one week instead of two.  Thanks to the generosity of our friends the LaContis and the Bergmans, we have a place to stay at the beach that is closer than the one we originally had rented so I can zip into the city Monday thru Friday – get zapped – and then come back to the beach by mid day.  I should also mention that graciousness of my good friend Michael who let us off the hook on the original house in Margate in order to afford us the opportunity to salvage a family vacation.  As I mentioned time and again, our community and our friendships consistently help us pull through situations created by the uncertainty that life now brings us.

So … bad news is the original vacation is out.  Good news is … I am not going to die in 3 months AND we will have a great last week of August at the beach as if we planned it that way all along.  So keep coming at me Myeloma.  I will adjust.  WE will adjust.  My community is stronger than your gang of idiots you’ve got trying to bring me down.

8/14/14 – Everyone Is Fighting a Battle …

When Robin Williams passed this week there were all kinds of posts and memes (what IS a meme anyway?) about “Everyone you meet is fighting a battle you know nothing about.”

This week our fantasy football league in town had a bit of strife. An email chain started and got out of control a bit regarding rules. It degenerated into anger, name calling and general stupidity. We lost sight of why we play the game. We lost sight of our friendships. It’s just not that important. We’ve got other stuff to deal with. All of us. Everyone is fighting a battle …

Today I am back at Mt. Sinai for a visit with Dr. J. My MRI came back with some disturbing stuff. There is another mass outside the bone that needs to be radiated. I’m not sure what it is but hopefully will get some answers today.

The good news is that although there is active Myeloma in the bone marrow I am structurally sound. No fractures. My spine is in tact and I don’t have any compression.

Hopefully we can blow whatever this thing is in my body up and get rid of this Cancer for good.

I have to admit, I am a bit scared. For the first time I am ceding control of my situation to the disease. I can’t choose when to get treatments based on MY schedule anymore. I need to hit this thing HARD and FAST.

I haven’t had a ton of pain. Last weekend was tough. Monday, Tuesday and Wednesday I felt great. Last night, however, I started to get shaky. Chills, sweats, pain. Strange. I could barely get out of bed this morning. When the alarm went off at 5 AM I didn’t want to move but I had appointments for work on Long Island.

Honestly, I didn’t think I was going to make it from my bed to the shower. Helene asked me why was I even going? I don’t know, really. It’s what I do I guess. What else was I going to do cancel my appointments and sit around the house until I could see Dr. J?

Silly.

My first appointment was with a prospect who I was meeting at a Starbucks in Smithtown. He didn’t show. I called him at his office. He said he would be there in 20 minutes – no – 1/2 hour. OK – my next meeting wasn’t until noon. I could wait. No big deal.

45 minutes later – a phone call – we need to reschedule. What? I barely made it out of the house let alone Smithtown, NY!!! Everyone is fighting a battle …. He didn’t know that but if he did would he have acted differently?

Let’s just say the day didn’t get much better after that. I will spare you the gory details but I had a good long seat in the Huntington Hilton men’s room for about 45 minutes as well.

FAST FORWARD … just got out of docs office:

Thankfully the news from Mt. Sinai isn’t as bad as I feared. Just a little tissue outside the bone. Will have 10 more days of radiation. We will biopsy the tissue Tuesday when I come back for chemo. The chemo may already be working against it anyway.

Dr. J set up appointments for me with the radiation department and Dr. M the biopsy guy. Dr. B, who did the first round of radiation, has left Mt. Sinai. I had to go see his replacement for a follow up and she left me waiting for over an hour. So I left. Her assistant called me the next day and I kind of went off on her. It was the second time they left me waiting and the second time I left. I hope I am not “flagged” in her system. Everyone is fighting a battle …

As they were drawing the blood work in the lab for the biopsy doc, one of my favorite nurses, Patrick, came into the lab. “You’re back again?” He said.

“Yep.” I answered. “This shit is relentless.”

He came back with “You are more relentless. I am convinced of that.”

I am more relentless. I am more relentless than Cancer. I am more relentless than Myeloma.

8/10/14 – Strength

Picking up where we left off last week …

When we last left I dropped Victor off at baseball camp, did my presentation at the conference and then drove back to NYC for treatment Monday and Tuesday. The week only got busier.

Long story short – I haven’t had chemo infusions for a long while. Everything has either been oral (Pomalyst) or a shot (Velcade) so I wasn’t prepared for the inevitable bloating from the Carfilzomib I went back to receiving. I felt horrible on Wednesday – not to mention the EXCRUCIATING back pain I was in. The back pain has gotten so horrible that if I am sleeping four hours a night it is a gift. I literally have to wake up and sit up at the side of the bed every 60-90 minutes because it hurts too much to lie down. What the … ?

But we aren’t going to let a little Cancer slow is down now are we … ? OF COURSE NOT!

Thursday night Helene and I drove back down to Baltimore to pick Victor up at camp where he won the RIP award – for RESPECT, INTEGRITY AND PERFORMANCE ON THE FIELD.

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During one of of my sleepless hours in the hotel Thursday night, I read a bunch of articles that spoke about back pain – EXCRUCIATING back pain – being a side effect of Pomalyst. The interesting thing is that my back feels fine during the day but about an hour or two after taking the Pomalyst it starts to hurt and by bedtime it gets intense. OK … a silver lining … the pain could be attributed to the medicine working and getting me better. I will take it. I will await the MRI results Monday to confirm.

BUT – no slowing down for us. We spent three days with a film crew this weekend making a short film for the MMRF. I don’t want to give it away but I was selected to be the subject of a short film about Myeloma, Myeloma patients and the great work of the MMRF. It is a big time project with lots of ambition which will debut (I think) at their gala fundraiser in early November.

The subject of my film is STRENGTH. We filmed all over town. Our house, the JCC, Kehler, the barber shop, the baseball fields and then spent Saturday morning in Manhattan on the subways. It was cool being followed around New York City by a camera crew for the morning. I felt like a TV star.

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STRENGTH not only refers to my drive and determination but to the STRENGTH and support I receive from family, friends and colleagues along my journey. The film is being woven through THE ROCKS. For those who don’t know about THE ROCKS, please click here to read about the amazing strength and support my community gave me as I headed in for my stem cell transplant last January.

STRENGTH is everything to me. We changed some things last minute on the film schedule as the director decided he wanted some shots of our fabulous friends and community. On our way home from Baltimore he called us and asked us to invite some friends over for a barbecue and swim in our backyard. I guess he heard about my grilling prowess and the Coustan raves that get thrown every weekend at our house in the summer. OBVIOUSLY A BIG PART OF OUR LIVES. Our friends came out in droves to take part in the scene. The director was amazed that our community rose up at the last minute to help out. But seriously – you can’t make a movie about us without a scene of me at the grill, right?

Best part of the night? Dr. R (Center for Acupuncture and Herbal Medicine) brought over his full size heating mat for me to lay on the bed and sleep on. OH MY FREAKIN’ GD! I feel so much better at night now. Actually getting in the full six hours!

So … let’s recap the week: Two trips to Baltimore, Chemo, MMRF film shoot, BBQ and a Yankees game with the family. All with back pain that would sideline an ordinary man. Today (Sunday) we have a birthday party for my brother in law and then I have the first of six fantasy football drafts I am in.

Oh … and by the way … I was the leading money raiser for my company this week. Not too shabby.

One more by the way … I put out two articles on fantasy football for FakeTeams.com as well. Even if you don’t like football, I think you will enjoy this one:

http://www.faketeams.com/2014/8/6/5973339/for-the-love-of-the-game

Is that all you’ve got Cancer? That’s it?

STRENGTH. I’ve got it. But it comes from all of you. The ROCKS. The ROCKS keep me supported, grounded, motivated and feeling loved by everyone who stands with me (us) in our battle.

STRENGTH. Sometimes it comes in unexpected ways. When the film crew dropped me off yesterday to go meet the family at the Yankee game, the director gave me a hug, shook my hand and placed this inside it. We will add it to the rock jar. One more stepping stone toward remission.

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8/6/14 – Flava From Ava

Many of you were able to access this through Twitter or Facebook but I was told that some were not.

Click here to read some of the most beautiful words ever to come out of a 10 year old girl’s brain – with a whole bunch of emoticons to enhance.

If the link doesn’t work you can go to the menu and click on Flava from Ava

Some Flava from Ava | bradstrong https://bradstrong.me/some-flava-from-ava/

Unreal! Love you kiddo!

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